00:01The genetic testing came back positive for spinal muscular atrophy.
00:05I can't believe this is happening.
00:07It's the most severe muscle disease a baby can have.
00:12You can be so happy and then like that, everything can change.
00:17You get bombarded with hospital appointments.
00:20My whole life has changed.
00:21Your brain is just like...
00:25I think she's into trouble.
00:30I don't know how I was going to do this.
00:31I feel like I'm going to feel heart broken for the rest of my life.
00:36I refuse to let anyone go through this again.
00:40If it's caught from birth, it is so life-changing.
00:44It blows my mind.
00:45Not only she exhausted herself with the girls,
00:48she's also doing it to help everyone else.
00:50They could have been able to walk and run and live how a child should live.
00:55That's the part that I will never be able to accept.
01:00With that I will never forget.
01:03I'll never forget.
01:04With that I will never forget.
01:04I will never forget.
01:04You only get a microcs at the end of the day.
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